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Search found 28 matches

by Bookworm
Tue Dec 28, 2021 3:53 pm
Forum: Main Board
Topic: Continued pain
Replies: 5
Views: 2143

Re: Continued pain

Thank you both for your replies. _SBKM - we were very close together then as my op was the 20th August. I’ve also had a scan which has returned ‘nothing wrong’. It’s really weird isn’t it. I’m sort of starting to see a connection with diet, it seems to have got worse with all the bad food and drink ...
by Bookworm
Sat Dec 18, 2021 11:56 pm
Forum: Main Board
Topic: Continued pain
Replies: 5
Views: 2143

Continued pain

Hi all, It’s been a while since I posted. I’m now 15 weeks post op (laparotomy) and wondered if anyone could help me by giving me some advise or a similar experience. My ectopic was in my left tube which was removed at the time of surgery, but ever since surgery I have had more pain in the right tha...
by Bookworm
Sat Oct 16, 2021 10:08 pm
Forum: Main Board
Topic: Finding it hard today
Replies: 2
Views: 1209

Finding it hard today

I had surgery to remove my pregnancy just over 8 weeks ago. I’m still not there physically but emotionally I don’t think I’ve even started to deal with it. I was holding out for counselling. I have ptsd from previous things that happened in my life and have ‘learnt’ to suppress and ‘turn down’ my fe...
by Bookworm
Tue Oct 12, 2021 11:36 pm
Forum: Main Board
Topic: Pain on the opposite side
Replies: 2
Views: 1110

Re: Pain on the opposite side

Hi

I had surgery 7.5 weeks ago and my pain has always been on the opposite side since I came out of surgery. I don’t have any answers for why I’m afraid but just thought it might help to know you’re not alone. Xx
by Bookworm
Fri Oct 01, 2021 10:51 pm
Forum: Main Board
Topic: Counselling post ectopic pregnancy surgery
Replies: 2
Views: 1114

Re: Counselling post ectopic pregnancy surgery

Hi

I’m so sorry to hear of your loss.

Just wanted to pop an answer on to say your GP should be able to refer you to NHS funded counselling and also you can try Googling IAPT services in your area as you can usually self refer to them without seeing your GP first.
by Bookworm
Fri Oct 01, 2021 10:48 pm
Forum: Main Board
Topic: What were your HCG levels after Methotrexate?
Replies: 15
Views: 14901

Re: What were your HCG levels after Methotrexate?

Hey everyone, I’m so sorry, during my post op recovery I didn’t come on here as much as I was really tired all the time and constantly asleep. Then week 4 post op we moved house and it’s been manic since then especially with me still being laid up. I hope you’re all doing ok! I just wanted to add ab...
by Bookworm
Mon Sep 27, 2021 9:45 pm
Forum: Main Board
Topic: First period - weird pain
Replies: 1
Views: 921

First period - weird pain

Hi all, It’s been a while since I’ve posted here. I’m just over 5 weeks post surgery. I had the c section type cut. It has healed really well in terms of my wound and by just over 4 weeks I was generally feeling like I was getting better. I was able to manage a 20 minute walk and go upstairs without...
by Bookworm
Sat Aug 28, 2021 11:17 am
Forum: Main Board
Topic: Laparotomy / open surgery
Replies: 4
Views: 1566

Re: Laparotomy / open surgery

Thank you Sarah I’m really sorry to hear you lost your tube too :( I think my main thing has been knowing what I can and can’t do as I start to feel better. I’m getting quite restless even a week post op! The wound is painful, my husband made me laugh this morning and my god it was awful but I could...
by Bookworm
Thu Aug 26, 2021 5:14 pm
Forum: Main Board
Topic: Laparotomy / open surgery
Replies: 4
Views: 1566

Laparotomy / open surgery

Hi I was wondering if anyone had any links to information to support after open surgery (not laparoscopic). I had open surgery on Friday to remove my ectopic as well as my left tube. The hospital didn’t give me anything to go home with that would advice me beyond the genetic ‘rest for 6 weeks’ and d...
by Bookworm
Thu Aug 26, 2021 5:11 pm
Forum: Main Board
Topic: What were your HCG levels after Methotrexate?
Replies: 15
Views: 14901

Re: What were your HCG levels after Methotrexate?

Hi! So glad your levels are decreasing will be keeping you in my thoughts to get to 0! My surgery was a bit of a weird one, I went in with pain and they were certain it hadn’t ruptured but because of the amount of pain combined with the hcg levels decreasing they decided to operate, they then discov...
by Bookworm
Tue Aug 24, 2021 9:44 pm
Forum: Main Board
Topic: Recovering from open surgery please help
Replies: 2
Views: 995

Re: Recovering from open surgery please help

Thank you, I’m really struggling to find much detail about recovering from open laparotomy surgery as most information about surgery seems to be aimed at laparoscopy. The hospital gave me next to no information when I left so I’m mostly relying on bits I can find on the internet about the recovery.
by Bookworm
Mon Aug 23, 2021 7:32 am
Forum: Main Board
Topic: Recovering from open surgery please help
Replies: 2
Views: 995

Recovering from open surgery please help

Hi all I’ve had a bit of a rollercoaster of a few days. I wasn’t happy with the rates my levels were dropping after my second dose of methotrexate and the amount of pain I was having. So I called the hospital on Friday and it was decided I should have a laparoscopy. However, when I got down to theat...
by Bookworm
Sun Aug 22, 2021 12:45 pm
Forum: Main Board
Topic: What were your HCG levels after Methotrexate?
Replies: 15
Views: 14901

Re: What were your HCG levels after Methotrexate?

Hope that works out for you Roisin! I ended up with surgery on Friday night and had my left tube removed 😔
by Bookworm
Thu Aug 19, 2021 3:45 pm
Forum: Main Board
Topic: What were your HCG levels after Methotrexate?
Replies: 15
Views: 14901

What were your HCG levels after Methotrexate?

Hi all, I was wondering if anyone could advise what their levels were after treatment with methotrexate please? I know every single one of us is going to have a different experience but it would be comforting for me right now to see how other people’s levels dropped as mine are going so slowly it is...
by Bookworm
Thu Aug 19, 2021 3:42 pm
Forum: Main Board
Topic: Hoping for a reply before Monday
Replies: 5
Views: 8499

Re: Hoping for a reply before Monday

Hi both thank you so much for replying it’s been a [heck] of a week and I only just got chance to reply myself. I went on Monday fully geared up to insist on an op and ended up getting shut in a room for hours waiting to see a doctor after the first doctor said he knew nothing about my case. In the ...
by Bookworm
Thu Aug 19, 2021 2:12 pm
Forum: Main Board
Topic: Back pain
Replies: 4
Views: 9495

Re: Back pain

That’s great news I’m so pleased for you!
I’ve been back and forth all week not got much further but my HCG is now 1328 so still falling very slowly.
by Bookworm
Mon Aug 16, 2021 2:38 pm
Forum: Main Board
Topic: Back pain
Replies: 4
Views: 9495

Re: Back pain

Thank you Kayleigh I’m sorry you’re going through it too but glad it’s working after your first one. I’m still feeling rough but the pain is better today than it had been. Bloods have now dropped today to 1612 they were 3888 2 weeks ago when I had my first injection so that’s a good drop I think. Ju...
by Bookworm
Sat Aug 14, 2021 10:42 pm
Forum: Main Board
Topic: Hoping for a reply before Monday
Replies: 5
Views: 8499

Hoping for a reply before Monday

Hi This is about my 4th post in the forum as I’ve gone through and continue to go through my ectopic pregnancy in my left tube. I have now been under the EPU for 5 weeks and I am not getting better. Quick summary is that I opted for methotrexate because nothing was explained to me properly at the ti...
by Bookworm
Sat Aug 14, 2021 2:01 pm
Forum: Main Board
Topic: Back pain
Replies: 4
Views: 9495

Back pain

Hi Has anyone experienced really bad lower back pain with their ectopic (mine is the left hand side). I’m day 12 post second injection of methotrexate levels as follows: Day before first injection: 1600 Day 4: 2780 Day 7: 3888 Second injection Day 4: 3754 Day 7: 3149 Day 10: 2121 Since the second in...
by Bookworm
Sat Aug 14, 2021 1:51 pm
Forum: Main Board
Topic: Methotrexate
Replies: 2
Views: 6669

Re: Methotrexate

Hi I didn’t want to just read and run. I’m on day 12 post second dose of methotrexate. My levels were similar to yours but not quite as high at 3888 and I was (and still am) experiencing the same worries. I had another 2 scans since and everything has stayed the same, But my levels are dropping and ...