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Ectopic surgery 24 hours ago

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One_in_denmark
Posts: 1
Joined: Fri Nov 20, 2020 7:47 pm

Ectopic surgery 24 hours ago

Post by One_in_denmark »

Hi everyone,

I had my ectopic surgery last night where my left tube was removed. It had ruptured but fortunately had only leaked 100ml of blood in my abdomen, which was still very painful.

Before the surgery everything was handled very swiftly and professionally (diagnosis and such), but afterwards I felt very abandoned. The nurses had me down as post-abortion, rather than post-ectopic and I did not get to speak to a doctor about my surgery until after I had demanded to, even though it's standard practice before discharging a patient. I also have no post-op followup booked and noone has mentioned anything like that. I just feel very lost and scared and sad, and I have many questions about my health and future chances to conceive. I want to try but am petrified of this happening again, and then feel incredibly sad of the possibility of never having a child.

How did you get through this time? There probably isn't any standard answer but any advice would be appreciated.
/Kristin

B67 B67
Posts: 13
Joined: Mon Jul 29, 2019 8:46 pm

Re: Ectopic surgery 24 hours ago

Post by B67 B67 »

Hi Kristin,
So sorry to hear of your ectopic and your experience. My daughter had an ectopic last year. She had a tube removed. She also had a miscarriage a couple of months ago. She has polycystic ovary syndrome. My daughter had no follow up appointment and her discharge paperwork had incorrect information on it. A few weeks after the operation, she decided to get access to her medical paperwork relating to the operation. She had an apology from the hospital and was told a junior doctor had written her paperwork out. It did make her feel slightly better receiving the correct information. She is also very scared of this happening again. She is looking at having a private consultation next year, as it doesn’t cost as much as she thought it would. I hope you receive the information you need and best wishes for the future. Bev xx

EPT Host 20
Posts: 1900
Joined: Thu May 31, 2012 9:58 pm

Re: Ectopic surgery 24 hours ago

Post by EPT Host 20 »

Dear Kristin,
I am so sorry to hear of your ectopic pregnancy and loss,
When we experience ectopic pregnancy we are suddenly faced with a life threatening emergency and it's treatment, reduction in fertility, concerns about the future and the loss of our babies. Experiencing any one of these is an ordeal, putting them together is immense and your feelings are completely normal.

It is normal to feel anxious about the future. We generally feel a mix of emotions from wanting to try again to being petrified of what may lie ahead. We never forget, but we learn to accept what happened. It is a slow process that might be weeks or months ahead.
In time, we can get to a place where we feel comfortable trying again. When this is, is individual for each person. There is no timeframe for recovery, take each day as it comes.
Importantly early scans avail. As soon as you know you are pregnant, contact your local EPU to inform them and book in for an early scan at around six weeks. Remind them of your previous ectopic pregnancy. This self refer route is the best route in our view. Hopefully you will have some comfort to know you are under the radar of medical professionals right away.

I have added our link to information on recovery from surgery here-
https://ectopic.org.uk/patients/treatment/
Often there is no follow up after surgery, however if you have questions about your care whilst in hospital or aftercare, feel free to speak to your GP who will be able to review your discharge letters and hopefully provide you with some answers.

Above all be kind to yourself at this time and allow time, to grieve to heal both physically and emotionally.
We will be here for you for as long as you need,
Sending much love,
Karen x

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