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Suspected third ectopic

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michellelouise
Posts: 2
Joined: Tue Jul 18, 2017 1:58 pm

Suspected third ectopic

Post by michellelouise »

I don't really know where to start, I am so sad and angry and overwhelmed....

I had two miscarriages in 2011 and was diagnosed with lupus and sticky blood. I was given treatment options to help sustain a pregnancy and although I was sad I felt positive about future pregnancies.

In December 2014 I had an ectopic after taking the morning after pill. No confirmation but I think there was a link so I had to deal with the guilt of that. I had two shots of methotrexate but if it had been explained that there would likely be damage to my tubes I would've insisted on surgery. I'm cross I wasn't given the option.

Last year I fell pregnant unexpectedly with my new partner. We were both excited. I stated the protocol to prevent miscarriage, only to find out it was a second ectopic on the left side. I begged the consultant to remove the damaged tube but my hcg levels were falling and my body dealt with it without intervention.

We saw a specialist last September who recommended ivf but I am slightly worried because of how the drugs could affect my lupus. I was just coming out of a massive flare and found out I was pregnant. We were both so excited. I informed the EPU straight away as I'm now high risk. We saw a lovely dr who scanned me and said the womb lining was looking good and was trilaminar and my hcg and progesterone levels were good. They retested my hcg on Saturday at it was doubling normally. I had a uti so started taking antibiotics on Friday but was generally feeling ok and optimistic.

I woke up on Sunday to blood in my underwear but no pain. I called the gynae ward and they said to go to A&E, so we did.

The same dr scanned me again and said she couldn't see any obvious cause of the bleeding and she said it was a threatened miscarriage.

They called yesterday and said my hcg has dropped by nearly 200 and progesterone has halved.

My hcg is pretty much the same as this point in the last ectopic (around 500) whereas with my miscarriages it was much lower.

I'm booked in with the head gynae tomorrow and I know it will be the same protocol of checking bloods and having scans etc.

Am I crazy that I just want to beg him to take the left tube out? We know I ovulated from the left side so this is the third time it has happened! Although it's not a confirmed ectopic I just know deep down it is.

I am completely devestated, I feel sad, angry and unable to focus on anything, let alone think about going back to work.

I don't know how many times I can go through this. I am truly broken.

Thank you for reading, it helps to know I'm not alone.

Michelle xx

EPT Host 20
Posts: 3155
Joined: Thu May 31, 2012 10:58 pm

Re: Suspected third ectopic

Post by EPT Host 20 »

Dear Michelle,
I am so sorry to hear of your ectopic pregnancy and losses, to experience one loss is difficult, to deal with multiple losses is heartbreaking and my heart truly goes out to you. I wish I could take this pain away for you.

Sadly I am not medically trained so cannot give you specific advice on your current situation.
I would advise talking everything through with your Dr, including how you feel emotionally. It is often a good idea to go into the appointment with questions and important information written down so you know you can have all your important questions answered and feelings heard.

You have been through a huge amount in such a short space of time and it is very normal to feel overwhelmed. From your words, I can imagine how frightening the experience must have been and I am sorry you have had to go though this.
You will need space to process what has happened and it can feel isolating. With us here at the Trust, we have been through similar experiences and I can understand how lonely it feels. You have a friend here and please do continue to lean on us for as long as you need.

I will be thinking of you tomorrow,
Sending much love and warm hugs,
Karen x


********************************************************************************************
If we have been able to help you, are you able to help us with a small donation or by volunteering?
Further information is available at www.ectopic.org.uk
Email us at ept@ectopic.org.uk.
Our helpline is 020 7733 2653 (available Monday to Friday 10am - 4pm).
Detailed medical information can be found on our website. Please remember online medical information is NO SUBSTITUTE for expert medical advice from your own health care team.
********************************************************************************************

michellelouise
Posts: 2
Joined: Tue Jul 18, 2017 1:58 pm

Re: Suspected third ectopic

Post by michellelouise »

Hi Karen

Thank you so much for your reply.

It was confirmed as a third ectopic on the left side today. We saw the yoke sac where the baby is trying to grow.

I told the dr I wanted my left tube removed as I can't keep going theohhh this. He agreed and said it will either be this week if my hcg levels aren't dropping or in a few weeks' time as an elective surgery when he is back from leave if they are dropping.

So I've had bloods taken and they're going to call me this afternoon to let me know. He was very nice and I was understandably upset and angry that I had begged his colleague to take the time out last year but he told us it was resolving on its own and that we should try again.

I'm scared about the surgery but I don't feel I have any other option. He will also check the right tube to see if it's ok be then we will know if ivf is our only option.

Thanks again for all your help.

Michelle

EPT Host 20
Posts: 3155
Joined: Thu May 31, 2012 10:58 pm

Re: Suspected third ectopic

Post by EPT Host 20 »

Dear Michelle,
I am so sorry to hear the ectopic pregnancy has been confirmed, it is a very difficult and worrying time and you have a friend here who understands.
I am glad to hear you had your concerns listened too and I will be thinking of you as you await your surgery.
As you've mentioned you are worried about the surgery, i've included a little bit of information that I usually post to ladies who are requesting advice after their surgery, I hope this helps.

You should take it very easily for about six weeks after surgery. Your body will be using its energies to heal internally. It is normal to feel physically and emotionally exhausted during this time and please do be kind to yourself. Recovery can take time and some days will be better than others, one day you maybe ok and the next you maybe in discomfort or more emotional. This is perfectly usual and the healing process will go back and forth in this way for however long you need. It is important to listen to your body's signals and pain and feeling tired are your body's signs to tell you to rest. We suggest keeping a healthy balanced diet, drinking lots of water and resting. Once your wounds have healed, very gentle exercise such as a short walk can help, but please do take this slowly.

Sending much love,
Karen x

**********************************************************************************************
If we have been able to help you, are you able to help us with a small donation or by volunteering?
Further information is available at www.ectopic.org.uk
Email us at ept@ectopic.org.uk.
Our helpline is 020 7733 2653 (available Monday to Friday 10am - 4pm).
Detailed medical information can be found on our website. Please remember online medical information is NO SUBSTITUTE for expert medical advice from your own health care team.
**********************************************************************************************

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