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“Ectopic”
“Ectopic”
I don’t know if I’m just being really sensitive but I’m finding it difficult when people refer to what’s happened as just “ectopic” eg “the ectopic was diagnosed…” or “ I told them you’d had an ectopic”. If they said ectopic pregnancy it would feel better I think but I feel just saying “ectopic” like it’s talking about a “thing” or some medical abnormality is belittling the loss and dehumanising of the fact I’ve lost a baby.
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EPT Host 20
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Re: “Ectopic”
Dear Enfys,
I am so sorry to hear of your ectopic pregnancy loss,
You are not alone in feeling this way, we hear from many people (and I include myself in this) who say they feel their ectopic pregnancy and treatment was very medicalised and there was little reference to their baby loss. I am so sorry you are going through this. As a charity, the Trust are trying really hard to educate healthcare professionals not only on the early signs and symptoms for early diagnosis I ectopic pregnancy but also around language used and ensuring staff recognise the fact their patient has just experienced a life threatening emergency and it's treatment AND the loss of their baby. I truly hope we will make a change for the future.
For now, know that you are among friends here who understand and will support you through this journey.
Sending much love and warm hugs,
Karen x
The Ectopic Pregnancy Trust
Registered Charity Number: 1071811
The EPT is awarded the PIF TICK as a Trusted Information Creator, the UK-wide quality mark for healthcare information
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If the information provided here or through the EPT website has helped you, you can donate towards our support services, volunteer, or fundraise to raise awareness.
Further information is available on our website.
Email us: ept@ectopic.org.uk
We provide a call-back support line: 020 7733 2653. We are able to provide support in multiple languages including British Sign Language.
Take a look at our newsletters and subscribe to our mailing list.
Detailed medical information can be found on our website. Please remember online medical information is NO SUBSTITUTE for expert medical advice from your own health care team
*************************************************************************
I am so sorry to hear of your ectopic pregnancy loss,
You are not alone in feeling this way, we hear from many people (and I include myself in this) who say they feel their ectopic pregnancy and treatment was very medicalised and there was little reference to their baby loss. I am so sorry you are going through this. As a charity, the Trust are trying really hard to educate healthcare professionals not only on the early signs and symptoms for early diagnosis I ectopic pregnancy but also around language used and ensuring staff recognise the fact their patient has just experienced a life threatening emergency and it's treatment AND the loss of their baby. I truly hope we will make a change for the future.
For now, know that you are among friends here who understand and will support you through this journey.
Sending much love and warm hugs,
Karen x
The Ectopic Pregnancy Trust
Registered Charity Number: 1071811
The EPT is awarded the PIF TICK as a Trusted Information Creator, the UK-wide quality mark for healthcare information
*************************************************************************
If the information provided here or through the EPT website has helped you, you can donate towards our support services, volunteer, or fundraise to raise awareness.
Further information is available on our website.
Email us: ept@ectopic.org.uk
We provide a call-back support line: 020 7733 2653. We are able to provide support in multiple languages including British Sign Language.
Take a look at our newsletters and subscribe to our mailing list.
Detailed medical information can be found on our website. Please remember online medical information is NO SUBSTITUTE for expert medical advice from your own health care team
*************************************************************************
Re: “Ectopic”
Thank you Karen. It’s really helpful to have that validation and understanding 
